Monday, May 9, 2016

First stick in port

Well it's 5/9/16 I finally got to use my new port for my infusions. It was great not being stuck a lot of times but one stick with a giant needle made up for it. I felt like I was stabbed in the chest. The nurse said next put oragel on the area and then saran wrap over it to deaden it.

Thursday, April 28, 2016

4/28/16

Went to Dr. Alexander's office.
A1C went from 7.6 to 6.8.
Tris dropped from 324 to 199
All other numbers were great to.
Feeling better then I have in years.

Wednesday, April 27, 2016

Dad

Well 16 years ago my dad died. I still miss him a lot.

MS GOOD NEWS 4/27/16

Went to Trivedi ' s office today. It's been a year. There is no progression of MS in the brain or spine. I will still have the limp and soreness. But it is worth it. I will win.

Tuesday, April 26, 2016

Eye dr

Went to the eye doctor today, got my eyes dilated now I look like I have x-ray eyes. But I had a great report. No issues and Diane had no issues.

Two stick

Well it's  been a week with my new power port and went in to get blood drawn and they couldn't use it due to being lab techs and not nurses. Two sticks and one blown vein.

Saturday, April 23, 2016

8 mile hick

Hiked 8 miles with Diane at Tunnel Hill trail. We had a lot of fun looking at nature. Sore a little but it felt good. The hiking sticks worked good and we took a day pack with us. It was a great start on our quest for the Appalachian trail.

Thursday, April 21, 2016

Walking stick workout 1

Well got my new walking sticks yesterday and today Diane and I walked 1.78 miles. I really need to work on using them. They helped my balance and guess helped my back pressure.

Monday, April 18, 2016

Port day 4/18/16

Well the day started at 5 am. We were at the hospital ( Herrin) at 6am and we're in the room by 7:20 am. The nurses were wonderful. Very friendly and fun. Heather Wilson was my surgical nurse.She a good friend from Life church. Dr Miller came in and explained thing then off to surgery. It took a little more then an hour all together. Came home and slept most of the day. Off to work tomorrow.

Monday, April 11, 2016

4.11.16

Well infusion day again. They used ultrasound to find my veins today, then they dug deep. Really thought it was going through my elbow. Nothing like seeing blood through a needle running down your arm.

Saturday, April 9, 2016

Day of Test

Haven't blogged in a bit sorry, too many things going on .
Yesterday 4\5\16 was a day of tests.
Had to be at the hospital by 6:00am to start. They started with a chest X-ray and then a blood test. They only stuck me one time thank goodness. Just got sat down from that and they called me for my MRI check up. Well it took ten sticks to get the contrast in. I felt like a pin cushion. It took 3 hours for that test and my back and right shoulder were killing me. Walked out after that into the lobby and it was light out.  When I went in it was dark still. Everyone was looking at me because of all the gauss pads taped to me. The last test was a EKG guess it had nod no issues.
All of this because of my MS and me wanting a port so I don't get stuck so much. Best part I got to sleep the rest of the day.    

Thursday, March 17, 2016

Year ago

Well a year ago today I was placed into the hospital not knowing what was going on with me. I was numb from the chest to the toes and could not walk. After an mri and spinal tab they found out I have MS.

Monday, March 14, 2016

6 sticks

Infusion Day again. This time it took 6 sticks and an hour and 20 min to find a vein to use. Thinking about getting a port, if it is going to be this much trouble. Thought Diane was going to pass out a couple of times during the process.

Wednesday, February 17, 2016

Birthday late

Well yesterday was my 51st birthday. Nothing major happened. Mom called but she was sick as usual. Had a lot of friends on fb wish me happy birthday. The day before was infusion day. Nothing special then either. Boring life. Party on.

Wednesday, February 3, 2016

Stress out

Well my MS was a pain today. I really think stress makes it worst. Work stress is horrible. Thinking I really need to get out.

Ms 2/3/16

Well my back and legs have bothered me for probably the past week. Today it just got worst as the day went on. By the time I got home it was rough. I took the dog (Sadie) out for a walk, by the time we were done I was bear moving so walking it off doesn't work, trust me.

Thursday, January 28, 2016

Endo good

Well yesterday went to my endocrinologist Elizabeth Lawler.
I was kind of worried because it is after the holidays.  She said I had lost 4 more pounds and my numbers 7.6 was right on track. My next appointment is in May. I have set a goal of more weight loss and drop my number to 7.0 A1C.
Started walking again. I will win this battle.
It is a two sided battle on one side MS and the other side Diabetes. Losing weight will help both.

Thursday, January 21, 2016

MS cure?

Hmm, could it be or not. There are so many drugs that control or lessen episodes of MS. The last in line and my drug of choice is a black box or black label drug. In other words it is drug that either kills you or can cause major brain damage. Until recently it was said that the average time on this drug is two years but as time has gone on people are taking it longer and longer. In my case it's been 8 months. Can I tell a difference, well I am walking and I have a degree of lesser pain. When I was first diagnosed I was becoming paralyzed.  Numbness up to my chest. Very scary,  I really don't want to go through that again.
A few years a go the was a doctor in Europe that said he found a way to cure for MS. It involved snipping nerves. Sorry that isn't happening. Apparently other thought the same way. You don't hear of that anymore.
Now England has done studies with stem cells. It stands to reason if the cell can regenerate newer cleaner cells why can't  they create new nerve cells with new protective coating. Back up would we need new nerve cells? Well MS deals with your own immune system attacking health nerve cells destroying the protective coating.
Okay there are 6 major types of MS . Look them up nasty stuff. The rarest and nastiest is a relapsing progressive type. In other words it gets worst as time goes on and there is no recovery or dormant time.
It would be truly awesome to have a new weapon to fight with and just maybe a safer one. Only time will tell.

Monday, January 18, 2016

Infusion jan

Well it was infusion day again. After being stuck four times to get a vein so they can shoot poison into me the long wait started. It is interesting watching people in there. No conversation is ever private.and everyone has something to say about it. The people that come in are a trip in themselves. They are low income to rich, rough and tough to quiet and meek.
I did' nt really realize how many different infusions there really were. Some last for minutes, others for hours. Mine is an hour. It is a black box drug, meaning it can kill you. Tysabri what a name and that's the easy name. It's for controlling spells or episodes as they call them. Guess it is working, I can still walk with little touble.

Sunday, January 10, 2016

it is 1/10/16
we had our first snow for the year. Depending on the area it ranged between 1in and 3in.

Monday, January 4, 2016

Liberty bowl 2

Better  late then never. The Liberty Bowl was awesome. Arkansas won big time. 45 to 28 sweet. It was cramped in the stands but would not have missed it. FEDEX flew a plane above the stadium and they waved at the crowd. Alex Collins and company did not disappoint. One downer was watching two older gentlemen having trouble  with walking. Is that what I have to look forward to. I hope not. Bryn surprised us by doing everything Diane wanted done. Way to go Bryn👍.

Saturday, January 2, 2016

Liberty Bowl

Well here it is bowl season again. Oklahoma  and Oklahoma State  were bust again. It seems like nearly every game have blow outs.
We traveled 4 hours to Memphis to watch Arkansas and Kansas State play I pray Arkansas leaves their high school team behind this week. I would really like to see them win.